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scan me to donate 

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Join Team PURA or donate to fundraise for needed research

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Join Team PURA
June 2

Help us fundraise for needed research

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#puraperfect

I         someone rare

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Rare Disease Day 2024

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I         someone rare         

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I            

someone

 rare

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“To me, Rare Disease Day reminds me that rare diseases are rare until they affect someone you love.”
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Rare Disease Day 2024

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Prof David Coman

Metabolic Physician, Clinical Geneticist, and Consultant Paediatrician QLD

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Rare Disease Day 2024

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Donate to help us reach our fundraising goal

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Parent Support Group for Australia and New Zealand

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Rebecca
PURA Foundation
Parent Contact

To contact Rebecca visit purafoundation.au/families

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Join Team PURA in the Melbourne Marathon Festival October 13th

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