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Awareness and Support

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The PURA Foundation Australia is a non-profit charitable organisation, that has been established to provide national and local support systems for individuals diagnosed with PURA syndrome and their families, across Australia and New Zealand.

We aim to facilitate education and awareness, assist in the advancement of research and treatments, and provide support for families of, and individuals with, PURA syndrome.

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Rare disorder is a marathon battle - Melbourne Herald Sun 11/10/23  

Foundation families share their story to help raise funds for the Melbourne Marathon Festival event.

PURA syndrome
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