PURA Foundation Australia
When we all work together, anything is possible.
The PURA Foundation Australia was established to raise awareness, provide education, and support research for individuals diagnosed with PURA syndrome and their families, across Australia and New Zealand.
With the input of scientific and community stakeholders, the PURA Foundation Australia plans to accelerate knowledge, increase clinical and scientific research, create education materials, and lead to development of new precision therapies for PURA.
The PURA Foundation Australia supports the PURA syndrome community both locally and globally. This community provides a place of belonging to those who may otherwise feel isolated by rare disease, enriches the medical research being completed and educates those outside the community about the condition.
Foundation, families, clinicians, and scientists as one community.
Goals:
-
To facilitate education and awareness of PURA syndrome.
-
To advance research and precision therapies for PURA syndrome.
-
To advocate for individuals with PURA syndrome and their family.
To assist us with our goals and our mission, please consider a donation to the PURA Foundation Australia today.
Education and Advocacy
Empowering families and the rare disease community.
Awareness
Creating visibility and collaboration.
Community
Creating collaborative spirit and belonging.
Support
Standing beside families on their PURA journey.
Research
Supporting scientific and clinical work that reflects the priorities of families.
When we all work together, anything is possible. #TeamPURA
PURA Foundation Australia Team
Our Directors and Committee members all volunteer their time and expertise.
Mel Anderson
Director and Chair
(Research and Governance)
Rebecca Nunn
Parent Support
Victoria
Natasha Keetley
Director (Community Engagement and Policy)
Jaime Martin
Parent Support
Queensland
Neil Anderson
Director (Treasurer
and Marketing)
Elle Zaremba
Parent Support
New South Wales
Kirsty Trueman
New Zealand
Liaison
TeTane Trinick
Parent Support
New Zealand
Amy Zagato
Fundraising and
Media