PURA Foundation Australia
When we all work together, anything is possible.
The PURA Foundation Australia is the only non-profit charity that has been established for individuals with PURA syndrome and their families, across Australia and New Zealand. We assist the PURA syndrome community by supporting and initiating research, raising awareness, and providing education.
This community provides a place of belonging to those who may otherwise feel isolated by rare disease, enriches the medical research being completed and educates those outside the community about the condition.
Goals:
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To facilitate education and awareness of PURA syndrome.
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To assist in the advancement of research and treatments for PURA syndrome.
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To provide support for families of, and individuals with, PURA syndrome
To assist us with our goals and our mission, please consider a donation to the PURA Foundation Australia today.
Please contact Mel Anderson (Director) mel.anderson@purafoundation.au
Annual Report 2023-2024
We are pleased to announce our first annual report, highlighting the journey, impact, and vision of the PURA Foundation Australia.
This report reflects our commitment to transparency, accountability, and positive change. It celebrates the dedication of our research affiliates, donors, and supporters, outlining how their contributions will help us create needed change for the PURA community.
On behalf of the Board of Directors and our executive committee, thank you for your support.
To read or download our report - PURA Annual Report 23-24
Mel Anderson - Chair
When we all work together, anything is possible. #TeamPURA
Our Values:
Respect - We welcome and value every person’s unique contribution with access and opportunity for all.
Community - We work together with families, clinicians, and scientists to define and achieve shared goals.
Optimism - We collaborate to seek and find solutions, confident in our team’s ability to achieve our shared goals.
Responsibility - We understand the importance of obligation and accountability within the organisation, planning for future growth and change.
Trust - We understand the importance of transparency and communication within the organisation, and with those we serve and partner.
PURA Foundation Australia Team
Our Directors and Committee members all volunteer their time and expertise.
Mel Anderson
Director and Chair
Research and Governance
Amy Zagato
Fundraising and
Media
Natasha Keetley
Director
Community and Outreach
Rebecca Nunn
Secretary
Parent Support Victoria
Neil Anderson
Director
Finance and
Marketing
Jaime Martin
Parent Support Queensland
Kirsty Trueman
New Zealand
Liaison
TeTane Trinick
Parent Support
New Zealand