PURA Foundation Australia
When we all work together, anything is possible.
The PURA Foundation Australia was established to raise awareness, provide education, and support research for individuals diagnosed with PURA syndrome and their families, across Australia and New Zealand.
With the input of scientific and community stakeholders, the PURA Foundation Australia plans to accelerate knowledge, increase clinical and scientific research, create education materials, and lead to development of new precision therapies for PURA.
The PURA Foundation Australia supports the PURA syndrome community both locally and globally. This community provides a place of belonging to those who may otherwise feel isolated by rare disease, enriches the medical research being completed and educates those outside the community about the condition.
Foundation, families, clinicians, and scientists as one community.
Goals:
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To facilitate education and awareness of PURA syndrome.
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To advance research and precision therapies for PURA syndrome.
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To advocate for individuals with PURA syndrome and their family.
To assist us with our goals and our mission, please consider a donation to the PURA Foundation Australia today.
When we all work together, anything is possible. #TeamPURA
Our Values:
Respect - We welcome and value every person’s unique contribution with access and opportunity for all.
Community - We work together with families, clinicians, and scientists to define and achieve shared goals.
Optimism - We collaborate to seek and find solutions, confident in our team’s ability to achieve our shared goals.
Responsibility - We understand the importance of obligation and accountability within the organisation, planning for future growth and change.
Trust - We understand the importance of transparency and communication within the organisation, and with those we serve and partner.
PURA Foundation Australia Team
Our Directors and Committee members all volunteer their time and expertise.
Mel Anderson
Director and Chair -
Research and Governance
Amy Zagato
Fundraising and
Media
Natasha Keetley
Director -
Community and Outreach
Rebecca Nunn
Secretary
Parent Support Victoria
Neil Anderson
Director -
Treasurer and
Marketing
Jaime Martin
Parent Support Queensland
Kirsty Trueman
New Zealand
Liaison
TeTane Trinick
Parent Support
New Zealand