Our Fundraising Events

Turn your passion into action and start a fundraiser today!

As a nonprofit charity, the PURA Foundation Australia relies on your donations to support our mission and research. There are so many ways you can get involved in raising much needed funds - online or in the real world. Whatever you choose, we’re grateful and always happy to discuss ideas!

Our journey to help those with PURA syndrome is just beginning. Every dollar raised takes us another step closer to needed support, research, and treatments.
Please help us improve the lives of those with PURA syndrome.

To speak with us about holding a fundraising event, please contact Amy Zagato

When we all work together, we can do anything. #TeamPURA

Brisbane, join us 💜 - Sunday 7th June 2026

Join Team PURA at the 2026 Brisbane Marathon Festival on Sunday 7 June and be part of something bigger. Whether you run, walk, or wheel, every step helps drive vital research for PURA syndrome.

Join our families walking the 3km event, or take on the 5km, 10km or more and run in support. However you choose to be involved, you will be standing alongside a community united by purpose.

We are proud to support world leading research led by Professor Chris Reid, in collaboration with The Florey and the University of Melbourne, focused on understanding the underlying causes of PURA and developing targeted epilepsy treatments. This work is critical to advancing future therapies, informing clinical trials, and improving outcomes for individuals and families living with PURA syndrome.

By joining Team PURA, you are not just taking on a personal challenge, you are helping raise essential funds to accelerate research and bring us closer to meaningful treatments.

Melbourne, join us 💜

Join Team PURA at the Melbourne Marathon and be part of something bigger. Whether you run, walk, or wheel, every step helps drive vital research for PURA syndrome.

Join our families and researchers walking the 3km event, or take on the 5km or 10km and run in support. However you choose to be involved, you will be standing alongside a community united by purpose.

We are proud to support world leading research led by Professor Chris Reid, in collaboration with The Florey and the University of Melbourne, focused on understanding the underlying causes of PURA and developing targeted epilepsy treatments. This work is critical to advancing future therapies and improving outcomes for individuals and families living with PURA syndrome.

By joining Team PURA, you are not just taking on a personal challenge, you are helping raise essential funds to accelerate research and bring us closer to meaningful treatments.

What a weekend - Team PURA in Sydney 2025

PURA families and friends walked the Sydney Mini Marathon over the weekend, and the energy was incredible.

From start to finish, it was all about community, connection, and funding research for much needed treatments for PURA. The cheers, the smiles, and the shared moments made it truly special.

It reminded us that every step counts and walking together makes it even more meaningful.

Grateful that PURA Foundation Australia could be part of such a powerful day. 💜

Finding strength in community - Herald Sun Sunday 13th October

Team PURA will band together to run, jog, wheel or walk the Melbourne Marathon to raise funds for desperately needed research into the syndrome.

In just the first year since it was founded the new PURA Foundation Australia has self-funded two key studies. Now it is working with the Murdoch Children’s Research Institute to research speech and communication for PURA syndrome.

“When you’re incredibly rare, your strength is in coming together,”
“Community is everything and we’ve built a community that can work together.”

Families, Clinicians, Scientists and Foundation as one community.
Read or download the article here.

Volunteer

Volunteer To help

Our amazing volunteers are the face of the PURA Foundation Australia. Here are some great ways you can volunteer:

Event Volunteers
- Organise a fundraiser, or
- Recruit people to attend fundraiser events, or
- Help at an event (even a single one helps!)
Corporate Volunteers
- Do you work for an organisation that wants to give back? Contact us to begin the discussion.

Who Can Be A PURA Foundation Volunteer?

We are a vibrant, diverse and inclusive organisation, and encourage volunteers of all backgrounds, skills and life experiences to get involved!

A few requirements to consider when applying as a volunteer include:

Volunteers generally need to be 18 years or older, 16 years for event helpers.
You'll need an email address.
Our volunteer onboarding process includes working with children checks to ensure all volunteers share our commitment to safety. The PURA Foundation Australia values community, integrity, impact and the individual needs of those with PURA syndrome and their families.

To enquire about becoming a volunteer, email info@purafoundation.au

Fundraising

Do You Have A Fundraising Idea?
There are so many ways you can get involved in raising much needed funds - online or in the real world. Whatever you choose, we’re grateful and always happy to discuss ideas! Contact us to start the conversation. Fundraising ideas include:

Run a market stall
Fundraise at your birthday
Charity dinner, luncheon or high tea
Trivia night
Golf day

Fundraise At School

Kids love helping kids - which makes fundraising for PURA Foundation Australia a great fit for your school. PURA impacts people from their earliest years, so students, teachers and parent communities can all clearly see the urgent need to help those with PURA syndrome. There are so many ways kids can get involved and challenge themselves while learning about helping others. Whatever you choose, it will help.
Fundraising ideas for schools:

Hold an art show
Add $5 to each ticket for PURA Foundation to a dance, talent show or music event
Host a spelling bee
Hold a bake sale at your school fair
Arrange a gold coin donation for a Dress-up day (e.g Footy Day)

We Need Your Support Today!

Donate