PURA Foundation Australia
Our Fundraising Events
Turn your passion into action and start a fundraiser today!
As a nonprofit charity, the PURA Foundation Australia relies on your donations to support our mission and research. There are so many ways you can get involved in raising much needed funds - online or in the real world. Whatever you choose, we’re grateful and always happy to discuss ideas!
Our journey to help those with PURA syndrome is just beginning. Every dollar raised takes us another step closer to needed support, research, and treatments.
Please help us improve the lives of those with PURA syndrome.
To speak with us about holding a fundraising event, please contact Amy Zagato
Finding strength in community - Herald Sun Sunday 13th October
Today (SUNDAY), they will band together to run, jog, wheel or walk the Melbourne Marathon to raise funds for desperately needed research into the syndrome.
In just the first year since it was founded the new PURA Foundation Australia has self-funded two key studies. Now it is working with the Murdoch Children’s Research Institute to research speech and communication for PURA syndrome.
“When you’re incredibly rare, your strength is in coming together,”
“Community is everything and we’ve built a community that can work together.”
Families, Clinicians, Scientists and Foundation as one community.
Read or download the article here.
2025 BRISBANE MARATHON FESTIVAL - June 1st 2025
Registrations are open for Full and 1/2 Marathon, 10km, 5km run and 5km walk with TEAM PURA
Join Team PURA for 2025 and help us raise funds for epilepsy research.
The PURA Foundation Australia is fundraising to increase our understandings of epilepsy that occurs with PURA syndrome. We have researchers at the Florey Institute ready to begin the research but funding is required.
"PURA is a disorder where the epilepsy can be devastating. Once it starts, it can rarely be fully controlled. We need research to understand the disease better in order to develop precise treatments" said Prof Richard Leventer.
Neurologist – Royal Children’s Hospital Melbourne
The PURA Foundation Australia is fundraising to complete PURA syndrome research here in Australia. We have scientists ready to begin but funding is required.
With this in mind, we invite you to donate to Team PURA and help us fundraise as we run, jog, wheel and walk our way through the best of Brisbane. Join us on the Story Bridge to write a new story for PURA syndrome.
Rare disorder is a marathon battle - Melbourne Herald Sun
Foundation families share their story to help raise funds for the Melbourne Marathon Festival event.
Do You Have A Fundraising Idea?
There are so many ways you can get involved in raising much needed funds - online or in the real world. Whatever you choose, we’re grateful and always happy to discuss ideas! Contact us to start the conversation. Fundraising ideas include:
-
Run a market stall
-
Fundraise at your birthday
-
Charity dinner, luncheon or high tea
-
Trivia night
-
Golf day
Fundraise At School
Kids love helping kids - which makes fundraising for PURA Foundation Australia a great fit for your school. PURA impacts people from their earliest years, so students, teachers and parent communities can all clearly see the urgent need to help those with PURA syndrome. There are so many ways kids can get involved and challenge themselves while learning about helping others. Whatever you choose, it will help.
Fundraising ideas for schools:
-
Hold an art show
-
Add $5 to each ticket for PURA Foundation to a dance, talent show or music event
-
Host a spelling bee
-
Hold a bake sale at your school fair
-
Arrange a gold coin donation for a Dress-up day (e.g Footy Day)
When we all work together we can achieve anything.
Volunteer To help
Our amazing volunteers are the face of the PURA Foundation Australia. Here are some great ways you can volunteer:
-
Event Volunteers
-
Organise a fundraiser, or
-
Recruit people to attend fundraiser events, or
-
Help at an event (even a single one helps!)
-
-
Corporate Volunteers
-
Do you work for an organisation that wants to give back? Contact us to begin the discussion.
-
Who Can Be A PURA Foundation Volunteer?
We are a vibrant, diverse and inclusive organisation, and encourage volunteers of all backgrounds, skills and life experiences to get involved!
A few requirements to consider when applying as a volunteer include:
-
Volunteers generally need to be 18 years or older, 16 years for event helpers.
-
You'll need an email address.
-
Our volunteer onboarding process includes working with children checks to ensure all volunteers share our commitment to safety. The PURA Foundation Australia values community, integrity, impact and the individual needs of those with PURA syndrome and their families.
To enquire about becoming a volunteer, email info@purafoundation.au