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Our Fundraising Events

Turn your passion into action and start a fundraiser today!

As a nonprofit charity, the PURA Foundation Australia relies on your donations to support our mission and research. There are so many ways you can get involved in raising much needed funds - online or in the real world. Whatever you choose, we’re grateful and always happy to discuss ideas!

Our journey to help those with PURA syndrome is just beginning. Every dollar raised takes us another step closer to needed support, research, and treatments.
Please help us improve the lives of those with PURA syndrome.


To speak with us about holding a fundraising event, please contact Amy Zagato

Great minds discuss ideas.                    #PURAfoundation


2024 NIKE MELBOURNE MARATHON FESTIVAL Sunday October 13th 2024
Registrations are filling NOW - Full and 1/2 Marathon, 10km run, 5km run, 3km walk with TEAM PURA

Join TEAM PURA Melbourne and help us fundraise for PURA research.

The PURA Foundation Australia is fundraising to commence a research study on speech and communication for PURA syndrome. We have researchers at the MCRI (Murdoch Children's Research Institute) ready to begin the research but funding is required.

"Imagine if your ability to communicate was hindered by a condition that wasn't fully understood. This is the case for people with PURA syndrome. Speech and language challenges may impact their ability to ask for basic needs, to explain pain and medical support required, and impact their learning at school."

"Yet, our understanding of these challenges remains incomplete. Our research will aim to change that. By characterising the speech and language abilities of individuals with PURA variants, researchers will seek to provide clarity in diagnosis, understand long term outcomes, and provide education and treatment planning for families and clinicians. Additionally, this research will contribute vital data to inform future research and clinical trial readiness." - Translational Centre for Speech Disorders, MCRI. (Murdoch Children's Research Institute, Melbourne)


With this in mind, we invite you to JOIN Team PURA and help us fundraise as we run, jog, wheel and walk our way through the city streets, passing iconic Melbourne landmarks before finishing with a lap of honour on the MCG’s hallowed turf.     
To register for an event or donate visit our page here


Registrations will open late 2024 - Full and 1/2 Marathon, 10km, 5km walk with TEAM PURA

Please donate to our 2024 Team PURA and help us fundraise for PURA research.


Help us make a difference as we run, jog, wheel or walk our way through the Brisbane city streets. Be part of Team PURA at the 2025 Brisbane Marathon Festival and help us, to help those with PURA syndrome.


Rare disorder is a marathon battle - Melbourne Herald Sun 

Foundation families share their story to help raise funds for the Melbourne Marathon Festival event.

PURA syndrome

Do You Have A Fundraising Idea?
There are so many ways you can get involved in raising much needed funds - online or in the real world. Whatever you choose, we’re grateful and always happy to discuss ideas! Contact us to start the conversation. Fundraising ideas include:

  • Run a market stall

  • Fundraise at your birthday

  • Charity dinner, luncheon or high tea

  • Trivia night

  • Golf day

Fundraise At School

Kids love helping kids - which makes fundraising for PURA Foundation Australia a great fit for your school. PURA impacts people from their earliest years, so students, teachers and parent communities can all clearly see the urgent need to help those with PURA syndrome. There are so many ways kids can get involved and challenge themselves while learning about helping others. Whatever you choose, it will help.
Fundraising ideas for schools:

  • Hold an art show

  • Add $5 to each ticket for PURA Foundation to a dance, talent show or music event

  • Host a spelling bee

  • Hold a bake sale at your school fair

  • Arrange a gold coin donation for a Dress-up day (e.g Footy Day)

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Volunteer To help

Our amazing volunteers are the face of the PURA Foundation Australia. Here are some great ways you can volunteer:​

  • Event Volunteers

    • Organise a fundraiser, or

    • Recruit people to attend fundraiser events, or

    • Help at an event (even a single one helps!)

  • Corporate Volunteers

    • Do you work for an organisation that wants to give back? Contact us to begin the discussion.

Who Can Be A PURA Foundation Volunteer?

We are a vibrant, diverse and inclusive organisation, and encourage volunteers of all backgrounds, skills and life experiences to get involved!

A few requirements to consider when applying as a volunteer include:

  • Volunteers generally need to be 18 years or older, 16 years for event helpers.

  • You'll need an email address.

  • Our volunteer onboarding process includes working with children checks to ensure all volunteers share our commitment to safety. The PURA Foundation Australia values community, integrity, impact and the individual needs of those with PURA syndrome and their families.

To enquire about becoming a volunteer, email

We Need Your Support Today!

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