PURA Foundation Australia
Our Fundraising Events
Turn your passion into action and start a fundraiser today!
As a nonprofit charity, the PURA Foundation Australia relies on your donations to support our mission and research. There are so many ways you can get involved in raising much needed funds - online or in the real world. Whatever you choose, we’re grateful and always happy to discuss ideas!
Our journey to help those with PURA syndrome is just beginning. Every dollar raised takes us another step closer to needed support, research, and treatments.
Please help us improve the lives of those with PURA syndrome.
To speak with us about holding a fundraising event, please contact Amy Zagato
When we all work together, we can do anything. #TeamPURA
2026 BRISBANE MARATHON FESTIVAL - Sunday 7th June 2026
PURA Foundation Australia supports world-leading research led by Professor Chris Reid, focused on understanding the underlying causes of PURA syndrome and identifying targeted epilepsy treatments.
As Professor Reid explains, “Our hope is to better understand what is causing the disease. By understanding this, we can design therapies that are more precise in the hope of helping not just the seizures, but the myriad of other symptoms these children have.”
This collaborative project with The Florey and the University of Melbourne will also help inform future clinical trials and provide clearer guidance for families living with PURA syndrome. By supporting Team PURA at the Brisbane Marathon Festival in June 2026, every dollar raised brings us closer to better research and treatments for those affected by PURA syndrome.
Read our Brisbane Marathon 2026 Sponsorship Agreement.
Walk or Run with Team PURA at the Brisbane Marathon Festival
Register now to secure Super Early Bird pricing until midnight 27 January, plus enjoy an automatic 10% discount off your registration fee if you join Team PURA when you register – no code or link needed. https://bmf26.grassrootz.com/purafoundation/
This is a wonderful chance for our community, families, friends and supporters to come together, get active and make a meaningful difference. Help us raise funds to support much-needed epilepsy treatments for those living with PURA syndrome. Let’s walk together and proudly shine a light on our incredible PURA community.
SYDNEY MINI MARATHON 2026
What a weekend - Team PURA in Sydney 2025
PURA families and friends walked the Sydney Mini Marathon over the weekend, and the energy was incredible.
From start to finish, it was all about community, connection, and funding research for much needed treatments for PURA. The cheers, the smiles, and the shared moments made it truly special.
It reminded us that every step counts and walking together makes it even more meaningful.
Grateful that PURA Foundation Australia could be part of such a powerful day. 💜
Finding strength in community - Herald Sun Sunday 13th October
Team PURA will band together to run, jog, wheel or walk the Melbourne Marathon to raise funds for desperately needed research into the syndrome.
In just the first year since it was founded the new PURA Foundation Australia has self-funded two key studies. Now it is working with the Murdoch Children’s Research Institute to research speech and communication for PURA syndrome.
“When you’re incredibly rare, your strength is in coming together,”
“Community is everything and we’ve built a community that can work together.”
Families, Clinicians, Scientists and Foundation as one community.
Read or download the article here.
Volunteer To help
Our amazing volunteers are the face of the PURA Foundation Australia. Here are some great ways you can volunteer:
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Event Volunteers
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Organise a fundraiser, or
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Recruit people to attend fundraiser events, or
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Help at an event (even a single one helps!)
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Corporate Volunteers
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Do you work for an organisation that wants to give back? Contact us to begin the discussion.
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Who Can Be A PURA Foundation Volunteer?
We are a vibrant, diverse and inclusive organisation, and encourage volunteers of all backgrounds, skills and life experiences to get involved!
A few requirements to consider when applying as a volunteer include:
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Volunteers generally need to be 18 years or older, 16 years for event helpers.
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You'll need an email address.
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Our volunteer onboarding process includes working with children checks to ensure all volunteers share our commitment to safety. The PURA Foundation Australia values community, integrity, impact and the individual needs of those with PURA syndrome and their families.
To enquire about becoming a volunteer, email info@purafoundation.au
Do You Have A Fundraising Idea?
There are so many ways you can get involved in raising much needed funds - online or in the real world. Whatever you choose, we’re grateful and always happy to discuss ideas! Contact us to start the conversation. Fundraising ideas include:
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Run a market stall
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Fundraise at your birthday
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Charity dinner, luncheon or high tea
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Trivia night
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Golf day
Fundraise At School
Kids love helping kids - which makes fundraising for PURA Foundation Australia a great fit for your school. PURA impacts people from their earliest years, so students, teachers and parent communities can all clearly see the urgent need to help those with PURA syndrome. There are so many ways kids can get involved and challenge themselves while learning about helping others. Whatever you choose, it will help.
Fundraising ideas for schools:
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Hold an art show
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Add $5 to each ticket for PURA Foundation to a dance, talent show or music event
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Host a spelling bee
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Hold a bake sale at your school fair
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Arrange a gold coin donation for a Dress-up day (e.g Footy Day)