PURA Foundation Australia
Designed to help families feel connected and supported, this area highlights parent and carer support groups for PURA, including networks for parents, siblings, and grandparents. Families will also find information on inclusive playgrounds and Changing Places facilities within the community.
Rare Disease Groups
Rare disease organisations provide clear, reliable information about rare conditions. They help patients, families, and professionals understand diagnoses, treatments, and available support.
PURA Syndrome Support Groups
PURA Support Groups provide a space exclusively for parents of children with PURA syndrome. These groups connect parents across Australia and internationally, creating a trusted community to share experiences, ask questions, and support one another.
All-ability Play Areas
Information on all-ability play areas that provide families access to inclusive, accessible spaces in their communities.
Changing Places and Disability Travel
Details about the Master Locksmith Access Key (MLAK) are included to support access to essential facilities such as Changing Places toilets and other locked accessible amenities.
Family Member Support
Support networks for siblings and grandparents offer connection with others who share similar experiences. These networks provide understanding, reassurance, and practical support tailored to the needs of extended family members.