PURA Foundation Australia
Our Fundraising Events
Turn your passion into action and start a fundraiser today!
As a nonprofit charity, the PURA Foundation Australia relies on your donations to support our mission and research. There are so many ways you can get involved in raising much needed funds - online or in the real world. Whatever you choose, we’re grateful and always happy to discuss ideas!
Our journey to help those with PURA syndrome is just beginning. Every dollar raised takes us another step closer to needed support, research, and treatments.
Please help us improve the lives of those with PURA syndrome.
To speak with us about holding a fundraising event, please contact Amy Zagato
When we all work together, we can achieve anything. #TeamPURA
Team PURA is heading to Brisbane in 2027!
On Sunday 6 June 2027, our community will come together for the Brisbane Marathon Festival, walking, wheeling and running to support PURA research here in Australia.
Register now and join Team PURA. https://bmf27.grassrootz.com/purafoundation/
We are also planning a PURA Research Education Day in Brisbane on Saturday 5th June, bringing families, supporters and researchers together to share updates on the research underway and the opportunities ahead.
Our focus is on advancing research that will help us understand PURA syndrome and move towards the development of targeted treatments.
We would love you to join us in Brisbane! Whether you walk, run, fundraise or support Team PURA, you can help us continue this important work. Stronger Together. Team PURA
Team PURA: Together for PURA
One community. One shared goal. What an incredible weekend for Team PURA at the Melbourne Marathon Festival on 10 and 11 October.
Families, friends, researchers and supporters came together to walk, run and wheel, raising awareness of PURA syndrome and supporting research here in Australia.
Over the past three years, community fundraising has helped PURA Foundation Australia establish important research in Australia. The support of Team PURA will help us build on this work, continue supporting research and expand opportunities for scientific discovery through our growing research collaborations.
This weekend was about so much more than fundraising. It was about bringing our community together, strengthening connections and showing what we can achieve when we work towards a shared goal.
Thank you to every participant, family, supporter and donor who helped make this weekend such a success.
When we all work together, anything is possible.
What a weekend - Team PURA in Sydney
PURA families and friends walked the Sydney Mini Marathon over the weekend, and the energy was incredible.
From start to finish, it was all about community, connection, and funding research for much needed treatments for PURA. The cheers, the smiles, and the shared moments made it truly special.
It reminded us that every step counts and walking together makes it even more meaningful.
Grateful that PURA Foundation Australia could be part of such a powerful day. 💜
Volunteer To help
Our amazing volunteers are the face of the PURA Foundation Australia. Here are some great ways you can volunteer:
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Event Volunteers
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Organise a fundraiser, or
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Recruit people to attend fundraiser events, or
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Help at an event (even a single one helps!)
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Corporate Volunteers
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Do you work for an organisation that wants to give back? Contact us to begin the discussion.
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Who Can Be A PURA Foundation Volunteer?
We are a vibrant, diverse and inclusive organisation, and encourage volunteers of all backgrounds, skills and life experiences to get involved!
A few requirements to consider when applying as a volunteer include:
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Volunteers generally need to be 18 years or older, 16 years for event helpers.
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You'll need an email address.
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Our volunteer onboarding process includes working with children checks to ensure all volunteers share our commitment to safety. The PURA Foundation Australia values community, integrity, impact and the individual needs of those with PURA syndrome and their families.
To enquire about becoming a volunteer, email info@purafoundation.au
Do You Have A Fundraising Idea?
There are so many ways you can get involved in raising much needed funds - online or in the real world. Whatever you choose, we’re grateful and always happy to discuss ideas! Contact us to start the conversation. Fundraising ideas include:
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Run a market stall
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Fundraise at your birthday
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Charity dinner, luncheon or high tea
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Trivia night
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Golf day
Fundraise At School
Kids love helping kids - which makes fundraising for PURA Foundation Australia a great fit for your school. PURA impacts people from their earliest years, so students, teachers and parent communities can all clearly see the urgent need to help those with PURA syndrome. There are so many ways kids can get involved and challenge themselves while learning about helping others. Whatever you choose, it will help.
Fundraising ideas for schools:
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Hold an art show
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Add $5 to each ticket for PURA Foundation to a dance, talent show or music event
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Host a spelling bee
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Hold a bake sale at your school fair
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Arrange a gold coin donation for a Dress-up day (e.g Footy Day)