PURA Foundation Australia
PURA Education Day
The Florey Institute of Neuroscience and Mental Health
Friday 9 October 2026
The Melbourne Marathon Walk event is Saturday 10th October.
Join us for a special morning bringing together PURA families, researchers and clinicians as we share the latest progress in PURA syndrome research and look towards the future.
Hosted by our Head of Research, Professor Michael Hildebrand, the morning will feature updates from our research teams, insights into current projects, and the opportunity to hear directly from the scientists working to better understand PURA syndrome and develop improved treatments.
Families will also hear from members of our community as they share their lived experience, reminding us why research matters and how every discovery has the potential to make a difference.
Following the presentations, attendees will have the opportunity to visit the laboratories and see firsthand where our world leading PURA research is taking place.Whether you are a parent, family member, researcher, clinician or supporter, this is an opportunity to connect, learn and be part of the growing partnership that is driving progress for PURA syndrome.
Location: Ian Potter Auditorium
Ground floor of the Kenneth Myer Building
30 Royal Parade, Parkville VIC.
Program: 9am - 12pm
Welcome - Prof Michael Hildebrand
- Prof Michael Hildebrand (University of Melbourne)
PURA Genetics Overview
- Sarah Nisbet (Phenomics Australia)
PURA Project Overview
- Jenna White (Reid Lab - The Florey)
PURA Mouse Model Update
- Dr Miya St John (MCRI)
PURA Communication Study
- Georgina Liapis (University of Melbourne)
PURA Vision Research
- Lauren Kelada (UNSW)
PURA Rare Disease Passport
Foundation update and lived experiences
Guided laboratory tours, 11.00 am
Following the Education Day, Rebecca will be organising an informal PURA family lunch. Venue and details will be shared closer to the event.
Together, creating knowledge, accelerating discovery and building hope for the future. 💜
Alone we are rare, together we are strong. #PURAperfect