PURA Foundation Australia
PURA Syndrome Education
These resources provide general information about a rare genetic condition, including overviews for families, clinical guidance, medical research, and specialist insights into associated health issues.
Communication Support
Communication can look different for individuals with PURA syndrome. This area provides information on communication supports and tools that help individuals express themselves and build connection.
Epilepsy Support
Epilepsy can look different for individuals with PURA syndrome and other rare diseases. This area provides information on epilepsy and on epilepsy organisations and supports that can help individuals and families.
PURA Education Videos
Discover presentations, conference talks and event highlights from PURA Foundation Australia alongside updates from international partners. Explore videos showcasing advocacy, community engagement and leading global research initiatives advancing understanding, care and outcomes for people living with PURA syndrome. These recordings help families, clinicians, researchers and supporters stay informed, connected and aware of the growing worldwide collaboration supporting the PURA community.